The SMA Foundation was created in 2013 by parents of children with spinal muscular atrophy who decided to join forces to build a support network for people in a similar situation.

The statutory goals of the Foundation are:

• conducting comprehensive activities for people suffering from spinal muscular atrophy and their relatives, especially those aimed at counteracting exclusion, increasing independence and improving the broadly understood quality of life;
• increasing public awareness of spinal muscular atrophy, in particular disseminating knowledge in the field of genetics, diagnostics, standards of care and therapeutic methods;
• increasing the availability of diagnostic, therapeutic and rehabilitation methods and techniques, as well as technological products and solutions for people affected by spinal muscular atrophy;
• supporting systemic solutions, in particular in the field of health care and social security, taking into account the needs of people with spinal muscular atrophy and their relatives.