The SMA Foundation was created in 2013 by parents of children with spinal muscular atrophy who decided to join forces to build a support network for people in a similar situation.
The statutory goals of the Foundation are:
- conducting comprehensive activities for people suffering from spinal muscular atrophy and their relatives, especially those aimed at counteracting exclusion, increasing independence and improving the broadly understood quality of life;
- increasing public awareness of spinal muscular atrophy, in particular disseminating knowledge in the field of genetics, diagnostics, standards of care and therapeutic methods;
- increasing the availability of diagnostic, therapeutic and rehabilitation methods and techniques, as well as technological products and solutions for people affected by spinal muscular atrophy;
- supporting systemic solutions, in particular in the field of health care and social security, taking into account the needs of people with spinal muscular atrophy and their relatives.
Category of aid
Health Care
- Rehabilitation / Physiotherapy
- Information (helplines, websites)
Information Sources
- General Information
- Health Care
Country / Region:
- Poland
- All of Poland
Who is the help for?
Age group
- Children
- Youth
- Adults
- Elderly
Support for vulnerable groups
- People with disabilities
- Chronically ill persons
Activity details
Form of legal activity
- non-governmental organization
Mode of operation
- helpline
- in-person
Assistance offered in language
- Polish
Period of operation
- permanent operation
Contact
Phone number
Email
Organization website
Social media profile
Address
- Przy Forcie 10/lok 99, Warszawa, Polska
- Set your route
Date of last data update
- 1 March 2024
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